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Christopher
Christopher's Page
Story
Hi there!
I am raising money for SBH Scotland as it is a charity that supports children with similar conditions as my son Mason, who has Hydrocephalus.
A bit about SBH Scotland from their website:
Our history
An organisation created by parents; for parents and their children. Spina Bifida Hydrocephalus Scotland was founded in 1965 (then known as Scottish Spina Bifida Association) by a small group of enthusiastic parents who each had a child with spina bifida.
In order to address the needs of their children who had varying degrees of disability, it was absolutely paramount that a National Organisation should be formed to speak with one voice and to advocate for those needs from a perspective of personal knowledge and understanding. In those early days local parent groups emerged in various localities throughout Scotland and each formed their own committee which was represented on a national co-ordinating committee. As the years progressed local branches were formed and although these branches had a significant amount of autonomy they were ultimately accountable to the National Association's Management Committee.
Today
50 years on, Spina Bifida Hydrocephalus Scotland's name now truly represents our current members and reflects the type of support we offer. We employ specialist staff who work across Scotland to provide a lifetime commitment of information, support and projects to all those affected by spina bifida, hydrocephalus and allied conditions.
Our vision
Scotland's voice for spina bifida, hydrocephalus and related conditions
"Spina Bifida Hydrocephalus Scotland seeks to increase public awareness and understanding of individuals with spina bifida and / or hydrocephalus and allied conditions. It aims to support all those affected to identify their needs and to empower them to make informed choices and decisions."
A bit about Hydrocephalus:
Hydrocephalus is a neurological disorder caused by an abnormal buildup of cerebrospinal fluid in the ventricles (cavities) deep within the brain. This excess fluid causes the ventricles to widen, putting harmful pressure on the brain's tissues. Hydrocephalus may be present at or shortly after birth, or may result over time from damage or injury.
Cerebrospinal fluid (CSF) is the clear, colorless fluid that protects and cushions your brain and spine. Cerebrospinal fluid flows through the ventricles and bathes the brain and spinal cord before being reabsorbed into the bloodstream. The body typically produces enough CSF each day and absorbs the same amount. Excess buildup of CSF can keep the brain from functioning properly and cause brain damage or even death.
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Spina Bifida Hydrocephalus Scotland
Spina Bifida Hydrocephalus (SBH) Scotland provides a wide range of support services to over 4,000 children, young people and adults in Scotland whose lives have been affected by spina bifida and/or hydrocephalus. Spina bifida is a neural tube defect which can lead to paralysis from the waist down; many of our service users are lifelong wheelchair users. 80% of people with spina bifida also have hydrocephalus which affects cognitive functioning. Our person-centred services include a helpline, workshops, individual and family support, home and hospital visits, youth clubs, health check clinics, one to one key workers and respite.
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